Hey mom, just passin through your blog and wanted to clarify that Epstein Barr is not the same as Epstein Syndrome. Vinnie had Epstein Barr (which is a virus) one of those times he was hospitalized for week because he could not walk. It was the only virus they could find in his system...definately not the same thing.
Well, kids I come in here to give you the latest...as far as I know about Reg's son...he has Epstein Syndrome...now that is an off shoot of Alports...twenty some odd years ago they called it Alports and from what I understand they don't know much about it..it attacks and destroys the white blood cells...when he went to the doctors his white cell count was down to 2000..it should be at 5000...so they transfused him and took him to St Louis...that is where they have come up with this Epstein Syndrome...it is supposed to attack the major organs of the body..heart..lungs...liver...kidneys..so on and so forth...now what we need is a good blood doctor...I will leave it up to you to know the correct name..I plead "blonde"...anyway...a blood doctor ...right now that is what we need...it would be nice to find one here in the state of Missouri...we have family looking the web over...I call on any of you that know how to drive a seach engine to look up anything you can on this...Reg sounded tired...she is holdin' up...very quiet right now as I'm sure you can all understand...they are getting doctors appointments set-up and all the stuff that goes with it...I ask you all to keep holding them in prayer...I love you guys and I hope some of this made sense Cracker
The first time I saw you Oh, you looked so fine And I had a feeling One day you'd be mine Honey you came along and captured my heart Now my love is somewhere lost in your kiss When I'm all alone it's you that I miss Girl a love like yours is hard to resist Oh, oh, ooh, ooh, oh
Penny lover, my love's on fire Penny lover, you're my one desire Tell me baby could this be true That I could need someone, like I need you
Nights warm and tender Lying next to you Girl I surrender Oh, what more can I do I've spent all of my life in search of your love Now there's one more thing I'd like to say Don't you ever take your sweet love away Girl I'll do anything, just please stay Oh, oh
I don't understand it, oh what's come over me But I'm not gonna worry, no not anymore 'cause when a man's in love, he's only got one story That's why my love is somewhere lost in your kiss When I'm lost and alone it's you that I miss With a love like yours, it's hard to resist Ooh, ooh, oh
[begin fade] Penny lover, don't you walk on by (don't you walk on by) Penny lover, don't you make me cry (don't you make me cry baby) Penny lover, don't you walk on by (don't you walk on by) Penny lover, don't you make me cry (oh penny baby) Penny lover, don't you walk on by (don't you walk on by) I remember the first time I saw you baby Penny lover, don't you make me cry You had the look in your eye, you had the look in your eye, yeah, yeah Ooh pretty baby I just wanted to reachout and touch you baby I just want to reach out and hold ya, I want to reach out and say ooh, ooh Don't make me cry I wanna talk about you everyday (penny lover) Need you, need you baby ...
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